MultipleSclerosisSucks.com Guestbook

58	Date: 2007-10-04 04:08:45 Melissa ( no homepage) wrote: You are such an entertaining writer for such a serious topic. Have been given a 'potential' diagnosis and went searching on line to find out more and found you! Keep up the great work.
57	Date: 2007-10-03 20:23:03 Allen Overton ( no homepage) wrote: I was diagnosed July, 1989, and I said yay! now I've got a good excuse to not be in the rat race. Thanks, Allen.
56	Date: 2007-10-03 04:37:36 Alice ( no homepage) wrote: Thank you. I have primary progressive and have been a pin cushion for Avonex for 7 years. I had always been told that a person did not die from MS, but continued to deteriorate. I recently heard that the author of Harry Potter books had a mother who died from MS - shocked me no end, so decided to look up this info on line and came across your site. Thank you for your information and it was interesting to read another's plight and humorous outlook on the MS life without the "buckle up and bear it" notations. Alice
55	Date: 2007-10-01 12:28:34 Laura Hamberg ( no homepage) wrote: Ms does suck Being a 47 yr old woman with MS I feel qualified to make this assessment. I have found the current drugs to suck as much as the disease itself. It is very hard for me to believe that a disease that is over a hundred years old has taken so many victims with little being done medically.
54	Date: 2007-09-30 19:29:22 Jack Stutts ( no homepage) wrote: I enjoy your dry sense of humor. Keep on writing.
53	Date: 2007-09-28 18:18:32 Trexous ( no homepage) wrote: This site is wonderful. I do not have MS, but this site has shown me the reality of what a very close friend, my cousin and an aquantance deal with on a reagular if not daily basis. Thank you
52	Date: 2007-09-28 16:24:08 Steve Watson ( no homepage) wrote: Enjoyed site very much. I put the license plate rim, MS Sucks.Com, on the front of my walker.
51	Date: 2007-09-27 14:38:31 Sherry Irving ( no homepage) wrote: I have a much clearer picture. Thank you.
50	Date: 2007-09-26 13:24:13 Missy ( no homepage) wrote: I really enjoyed your website! I am going through all of the things you have been through and it is nice to read things that might humor me a little about something so serious when I feel down. You really made me smile. Thanks!
49	Date: 2007-09-19 14:56:56 Julie Wilson ( no homepage) wrote: Thank you. MSsucks.com is exactly what I needed; a reprieve from the over-enthusiastic and/or, depressing results of the research I've done since I fist started having symptoms two years ago. Having just received a confirmed diagnosis a few months ago, I needed some honesty and a good laugh. I found them both here and will refer others who may need them as well.
48	Date: 2007-09-18 17:46:15 Melissa ( no homepage) wrote: I love this site. My husband was diagnosed in Jan 06. We enjoy the beer theory and have used it. My husband has quite a sarcastic sense of humor and I think you'd get along. Thanks for the laughs, it helps to laugh
47	Date: 2007-09-17 04:31:13 Mia Lee Bauman ( no homepage) wrote: Great site so far. If I don't die from THE brain virus from my first Tysabri infusion two weeks ago, I'll be reading the rest very soon. Very funny and very intelligent. I'm an improvisational comedian, so I should know. (No smiley face will be inserted here.)
46	Date: 2007-09-17 04:34:16 Les Homan ( no homepage) wrote: Thank you for the great web sight. I have read it seveal times.It has helped alot more than any other Ihave been able to find.I was diagnost about 9 years ago at 28 shortly after my son was born (one hell of a birth gift.) Keep up the great work.
45	Date: 2007-09-17 03:14:16 Laurie Fournier ( no homepage) wrote: I agree with most of what you've written, but I disagree with you on one big thing. Bill O'Reilly isn't much of a journalist.
44	Date: 2007-09-15 04:08:50 Gayle ( no email / no homepage) wrote: Hi! Really enjoyed your site...my sister was recently diagnosed and she has your personality....!!!Wonder if that's one of the symptoms of MS?!!! Thanks for all the insites and realistic attitude...
43	Date: 2007-09-14 15:18:48 Jeanette ( no homepage) wrote: I have to say, being diagnosed 3 days ago that this is HILARIOUS! I have cried from laughing hard at a few of your pages. Kudos. Great job. I've already given some around me this web address. Thank you for the laughs and the incredible insight.
42	Date: 2007-09-14 13:46:16 Toni ( no homepage) wrote: Thank you for taking the time to put this website together. It has made me do further research on this blasted disease and all of the wonderful changes that may or may not happen to me in the future.
41	Date: 2007-09-14 03:07:21 Melinda ( no homepage) wrote: Thank you,loved your testimonials. and have sent fellow MS'ers your site Keep writting Again Thank you
40	Date: 2007-09-14 03:03:32 Melinda ( no homepage) wrote: I found your testimonials, so true and enlighting, I have send some of them to my family and other MS'ers. Thank you and keep writting .Melinda
39	Date: 2007-09-12 13:27:52 wendy ( no homepage) wrote: I haven't read it yet, just got to the part where if I can sign your address book if I like it, the introductory part is a riot. I have MS (DUH) and trash MSLIFELINES everytime it comes. Or fold cantelope peels into it before trashing it. Right now sitting here with a migraine from the shitty rebif shot and can't walk because of the Fricking, well, you know what I mean, cramping in my upper thigh. I NEED HUMOR!!! I will continue reading, thanks TX! Going to buy a T-Shirt to keep you in business too if I can figure out how. Best Wishes to you and yours and continue on! Can't wait to read it NOW!!!
38	Date: 2007-09-11 21:41:08 Tracy ( no homepage) wrote: I found your site today, when I was having one of my "pathetic MS" moments......I loved it!!! I appreciate your honesty and needed to read something other than the typical messages. Thank you..MS does suck and there is no skirting around the issue. I like your sense of humor...reminds me of the Kipling poem...if you can keep your head while those around you are losing theirs....
37	Date: 2007-09-10 05:03:05 Dom ( no homepage) wrote: A mind is a beautiful thing not to waste. Thanks my friend for sharing your gifted thoughts on our paths.Your walking the steps set before you{no pon intended}. Keep it up. Dom
36	Date: 2007-09-09 16:35:03 James Urquhart ( no homepage) wrote: This site is a wonderful relief after exhortations to fix my MS through prayer (from a removal guy, and before him a nurse - both really lovely people, but oddly mistrustful of medical science). Ignoring alternative medicine, I'm going to sit back and wait for this DNA vaccine thing, which simply has to be the magic bullet we've all been lining up for.
35	Date: 2007-09-07 03:43:21 Andy Turits ( http://www.planetandy.com) wrote: Thank you for spelling it out so succinctly...Diagnosed in 2001 at 39, on Avonex...multiplesclerosissucks.com makes me laugh and really helps to understand the pathology of friends and family post diagnosis...I've sent friends and family who tell me "Oh everybody gets slow in the heat," I've taken the liberty of linking to you in my pitch for donations to the MS Swim the Hudson fundraiser for NMSS on 9/16/07. Please let me know if you object to that...with your permission I will link you permanently...by the way I really DO look great! Thank You, (Planet) Andy
34	Date: 2007-09-01 00:36:41 Dave ( no homepage) wrote: Your site is cool! I'm 48 and have been sharing living space with the 600lb. gorilla for 24 years. Thanx for your effort.
33	Date: 2007-08-31 02:24:37 Laura ( no homepage) wrote: Thankyou for writing truthfully and honestly about this disease. I personally do not have this but work with a 57 year old lady who is in the end stages of Devics disease..each day is a uphill battle anymore...her trying to cope and me trying to understand each thing she is going through. Your articles have given me a better understand and for that I thank you...good luck and god bless you
32	Date: 2007-08-30 10:26:42 Karen ( no homepage) wrote: Hello to all! This site has made me snicker for several years, if I was a writer I would say almost the very same things, but from an aged jaded and female perspective. I miss the forum. K.
31	Date: 2007-08-29 23:39:20 Rusty ( no homepage) wrote: I have MS and it sucks ! Most of the organizations dead a cagid to MS are, I believe, exploiting those of us with MS. I am not going to be a wine ee poo. I think having a sence less sence of humor helps. Please excuse errors, misspellings etc, part of the cognitive impairments. Thanks, Rusty
30	Date: 2007-08-29 02:02:06 Lisa ( no homepage) wrote: I enjoyed reading your website. I am a 36 year old mother of 2 who was diagmosed two months ago. Thank you for your realistic and often humerous writings.
29	Date: 2007-08-28 14:30:57 Peter Rice ( no homepage) wrote: Im a 20 year old care assistant, and I found this site very informative. Keep up the good work!
28	Date: 2007-08-23 11:49:43 Kim McKnight ( no homepage) wrote: Awesome website. Enjoyed reading. I also believe MS really sucks. I am so tired of the fatigue. How stupid does that sound?
27	Date: 2007-08-16 06:57:10 Kimberly ( http://www.chroniquecouture.com) wrote: Hi, You have a really great site. You are honest -yet amusing and you put smiles on many faces....and that is saying a lot! I was diagnosed with MS June of 2006. Thanks for your wonderful site. Kim Flynn Chronique Couture
26	Date: 2007-08-08 15:53:30 karlene ( no homepage) wrote: I haven't been to the site since your move ... I hope it's all gone well. My MSSucks sticker is doing of slow fade ... heck, some days, so do I!! Take care!
25	Date: 2007-08-08 07:55:24 Stephanie ( no homepage) wrote: I have really enjoyed your site! It certainly left me smiling. I appreciate your candor. I have been diagnosed with MS since 1999 when I was 23 and I have said all along that MS Sucks! I'm glad to hear someone else say it too. I can't believe I haven't found your site sooner - but then again maybe I have and just don't remember it.... Dang it MS Sucks! :)
24	Date: 2007-08-07 14:08:27 Sparrow Dayton ( no email / http://www.w4sul.com) wrote: I found this wonderful site 3 years ago. I visit often, and never grow tired of your wonderful prose. MultipleSclerosisSucks.com helps me keep my sense of humor about my MS., and should be required reading for the families and coworkers of MS sufferers!
23	Date: 2007-07-27 03:31:39 Cass ( no email / no homepage) wrote: I have never laughed so much in my life. Thank you for the humor in what is a incurable degenerative disease that eats our brains... Because I dont have the classic form of MS ( I have a severe cognitive disorder) I am always told, You dont look that bad. I swear, I would love to take my Aunt Mils tit and slam it in the door everytime she tells me , "But you dont look sick" Instead, I tell her, I dont know where she heard the rumor, but I do not have MS..I instead tell her, I really had a sex change- ( No people, I didnt have a sex change!) But that did shut Aunt Mil up for awhile with her opinions of how I should look if I really had MS. Sometimes, I lead her to think I am a drunk.. Anything to make myself laugh in the company of idiots... Thank you so much for the hardly laughter you provide- Keep up the good word!
22	Date: 2007-07-27 02:43:18 Jeff ( no email / no homepage) wrote: Hi my name is Jeff and I was diagnosed with MS about 4 years ago. At the time I was diagnosed I was 29 and I admit I was very scared and not sure what was happening to me. It started off with falling while doing yard work, and then was a little more difficult with double vision and more. At the time, like most that have been told they have MS, I spent weeks and hours looking up everything about MS. Looking back after 4 years I wanted to thank you for your site. It was one of the sites, that I read every line. It helped me over the first few months. Over the past few years I have ran across friends and friends of friends, that have MS, and I told them how refreshing your site is. It was great hearing about what MS is, what I should expect, and why/how I got MS. It was great reading about it from someone who is in the same shoes I was in. Funny story about your site and how it was involved in a side story to MS. When I was first diagnosed my best friend, who is now my wife, and I talked a lot about the issues I was having, my tests, etc. I was telling her about the site and I was telling her to read/look at it. I sent her an email with www.mssucks.com and I did not know that you spelled out the name. She then sent it to her family. When she clicked on it, it was linked to a porn site. She asked me if I sent her to a porn site on purpose. I assured her that I did not. Since then we started dating and we got married last year. You know you are destined to marry the woman if you send her porn and she still will date you. Thanks again for helping me out a few years ago. Please realize that your site my a difference over the first few months. I am not glad I got MS, but I am glad it made me realize that there are more important things in life than working, playing, and other things that a twenty year old thinks about. I wish you and your family the best.
21	Date: 2007-07-25 23:58:08 Blake ( http://teamsail.org) wrote: Great site! I was diagnosed in Dec. of 2003. I know it's a cliche, but humor is still the best medicine. I so tired of reading through medical sites full of sanitized garbage that I think I may implode if I come across another one. Thanks for giving me plenty to smile about.
20	Date: 2007-07-25 11:34:12 Kai ( no email / no homepage) wrote: Hey man, Just want to let you know that I think your site rocks. It�s just the right touch of information and humor. You should serious considering publishing...maybe "MS for Dummies." Good luck.
19	Date: 2007-07-20 21:34:42 Julie ( no email / no homepage) wrote: Thank you for creating this site. I just went through 2 useless courses of steroids before my blood tests came back- positive for Lyme disease. Then I had a PICC line and IV Rocephin for a month. Now we are waiting for a few months to see if there is new disease activity on MRI, or if the antibiotics worked. This is how we will know which disease I have. This has been very physically painful and most of the MS literature out there is similar to the disease in that it JUST PLAIN SUCKS! Thank you for sharing your experience so honestly. One of the scariest things about the disease is the prudish, Victorian silence that veils discussion of day to day life as well as death. Thank you for your discussion of death. I realized pretty early in the game that "complications" would likely mean infection (pressure sores + incontinence + therapeutic immunosuppression = rampant infection) pneumonia, etc, etc. Although the idea of "dying of complications of MS" is presented by the MS society in a reassuring manner, I immediately saw what that meant and was NOT reassured by it. Your site has provided what the MS society does not; an uncensored look at what it means to have the disease and an honest discussion of ALL of the options available. The material is presented in a straightforward and humorous way that does not obfuscate or patronize, but educates and empowers the reader. It made me laugh and feel less alone. Thank you for the breath of fresh air!
18	Date: 2007-07-20 03:52:01 dana ( no homepage) wrote: I came across your website by accident by searching for "MS" and "death" in Google. I saw your response to the question about death and MS, how there is a veil of secrecy around it, and I do agree. For years I didn't think you could die unless it was from complications. But that isn't true, as you know, and I know now from personal experience: My mother died last month from MS. She died because the disease was affecting her diaphram, and her lungs. After being essentially paralyzed from the neck down for over a decade, she started to lose her appetite, had trouble breathing, started to use oxygen as needed until it was all the time. It took her eight days to die. I'm glad for anyone suffering from MS that what happened to her IS rare. Most people do not die from the disease itself, though the complications (which include infection and bed sores) is certainly a different issue.
17	Date: 2007-07-18 06:54:19 Jacqueline ( http://www.myspace.com/zachandsolomonsmom) wrote: I have ms. it sucks.
16	Date: 2007-07-11 23:24:56 Jolie Rajasekaran ( http://www.blogit.com/Blogs/Blog.aspx/gypsyredhead33/) wrote: I learned a lot from this site and didn't feel like you were talking down to me! I haven't found another one that shot straight from the hip quite this way. Thank you for creating it and putting so much work into it.
15	Date: 2007-07-09 18:24:07 Rob ( no homepage) wrote: Very interesting sight. Diagnosed 2002 and can relate to alot of what was said.
14	Date: 2007-07-07 11:47:46 peggy ( no homepage) wrote: Thank you for all the interesting info.
13	Date: 2007-07-07 01:14:52 peggy ( no homepage) wrote: Thank you so much. I just found your website and really enjoyed reading all the information.
12	Date: 2007-07-04 12:04:58 Nat ( no email / http://beansmail.blogspot.com/) wrote: Thanks for all the hardwork that you have obviously put into your website. It is always interesting to read somebody else's experiences, and to know that you are not alone!
11	Date: 2007-07-04 04:28:08 Julie Carter ( no homepage) wrote: Thank you. I have recommended your page to lots of people. I might have already signed your book. Look forward to reading more.
10	Date: 2007-06-29 22:39:06 Lucy ( no email / http://www.trucknetuk.com) wrote: Love it. Just....Love it. Dx - RRMS
9	Date: 2007-06-28 16:06:33 Julie Carter ( no homepage) wrote: MS SUCKS! Could not have thought of a better way to put it. I was diagnosed in 2002.
8	Date: 2007-06-28 01:36:06 garnish on a plate ( no homepage) wrote: I love this site, because it's the only thing out there that is true. And this "I have MS but MS doesn't have me" and The Secret now: like we brought this on ourselves by negative thinking and bad karma. And what about the MS heads-on-a-plate saying MS is the best thing that ever happened to them. Such a mountain of palaver steaming rancid bull crap. Please write some more and update your site. It's true. Multiple Sclerosis SUCKS!!!
7	Date: 2007-06-27 03:42:15 Roger ( no homepage) wrote: Pretty cool stuff.The only thing I might add is a fall back to my old biker days(before doctors and lawyers became bikers,snicker,snicker)MS, IF I Had To Explain It To You,You Wouldn't Understand.
6	Date: 2007-06-19 22:29:30 Ben ( no homepage) wrote: I just found this site today (2007.06.19). I was diagnosed in March after having the disease for 17 years and not knowing it. Love what I've seen so far; email if you have a moment, I have a question or two. Ben
5	Date: 2007-06-19 02:34:32 karin ladd ( no homepage) wrote: thanks for an awesome website~! Im newly diagnosed, and this site is really on par with my sense of humor..keep up the good work!!!
4	Date: 2007-06-17 18:10:30 Cheryl ( no homepage) wrote: Thank you for your time in creating such a great site. I have enjoyed reading it more than once! You are truly an inspiration and I love your writing!
3	Date: 2007-06-13 15:31:11 Jan ( no homepage) wrote: This is one of the most plain-spoken web sites I've visited for info on MS. I was diagnosed 3 years ago, and I'm still coming to terms with all of the physical changes, not to mention the mental adjustment. thanks.
2	Date: 2007-06-10 07:39:30 Gail Porter ( no homepage) wrote: This site is a breath of fresh air for me. The way other people treat you, like you're making it up, is so true. At work, I have been put on half-time by my doctor, and this had reduced some of the more obvious symptoms. My co-workers are sure I am "getting over." I like what your new year resolutions had to say, as I've felt like doing (and have done) the opposite of several of them (except the last one!) I need to be reminded that I do have a choice much of the time.
1	Date: 2007-06-07 15:55:20 Tracy Ralls ( no homepage) wrote: You're my hero! I think you should compile a book of your writings with all your insight and humor, publish it (globally) and soon you'd have more speaking engagements than you could keep up with, and enough money to fund the science that may or may not lead to a cure for us all! You're intelligent and real, and a dynamite person. You've made the truth more bearable...thanks! Hope to see you on Oprah or at the very least find out you've got a controversial talk show on satellite radio!